当会では2017年末に英語のHPを公開しました。当法人製作のドキュメンタリー映画「この手に希望を～ME/CFSの真実」の英語字幕付き版が、間もなくVIMEOに公開されることを、”International Release of Documentary Film on ME in Japan”と題して、英語のHPに掲載致しました。海外にお知り合いのいらっしゃる方は、ご紹介頂ければ幸いです。
Japan ME Association will soon release on VIMEO an English-subtitled version of our documentary film on the situation of ME patients in Japan, “Hope to Our Hands: The Hidden Story of ME/CFS in Japan.” We will add a link to the VIMEO page here and on our main page as soon as it is available later this month.
Originally created to raise awareness among medical professionals and policymakers and screened across Japan since its completion in 2018, the new English-subtitled version brings the film to an international audience for the first time. The trailer (with an English translation) can be viewed here.
The situation of Japanese ME/CFS patients has long been unknown outside Japan. Most Japanese patients lack the English skills to access online information from abroad. Amidst this isolation, the Japanese government and medical profession have continued to neglect the disease as a “fatigue” illness with psychogenic factors for the last 30 years. It is also the story of patients’ efforts to advocate for much-needed change in the country and of the Japan ME Association, founded in 2010 by Mieko Shinohara, who fell ill with ME while studying abroad in the United States.
Receiving accolades from the Japan Medical Association president and the former Japanese Society for Neurology president and the strong support of patients and doctors alike, it is our hope that in sharing the English-subtitled documentary, Japan can begin to join the international ME/CFS community to advocate for patients’ lives.